Key workers have long been recognised as the most important solution for families with disabled children in addressing the challenges of working with the services that support them. The Department of Health National Service Framework outlines that all local authorities, primary care trusts and NHS trusts should ensure that families caring for a disabled child with high levels of need have a key worker.
Despite this, local practice can suffer from a lack of strategic commitment. The Early Support programme has demonstrated the power of key working in the early years context and the National Transition Support programme helps local areas develop key working as part of young people's transition to adult services. However, evidence of good practice in key working for families with children aged five to 14 remains limited.
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