As a Roald Dahl children's epilepsy nurse specialist, my job is allabout advocacy and empowerment for young people with epilepsy. I haverecently been working with a 16-year-old boy with idiopathic generalisedepilepsy. The boy was studying at college and living without the supportof his parents.
He was reluctant to accept his epilepsy and was also experiencing anumber of negative side effects from his medication. Because of this, hestopped taking it and had not taken any for six months. As a result, hehad a prolonged seizure and was admitted to hospital. At this point Iwas called in to talk to him.
I did not want to risk alienating him by insisting that he continuedtaking the medication against his wishes.
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