It follows the success of the campaign's local authority charter, which has now been signed by 40 out of 150 English local authorities.
Many families with disabled children struggle to access good quality health services, campaigners say. Four out of five families report that needs are not met in relation to vital equipment, for example.
Steve Broach, Every Disabled Child Matters campaign manager, said: "All the evidence suggests that disabled children are not having their needs met by their local health service, so we want every trust to sign our charter to commit to making this change."
The charter sets out nine commitments for Primary Care Trusts (PCTs) to sign up to by January 2009. These include identifying a children's lead with specific responsibility for disabled children and ensuring all parents and young people in their area get accurate information on the services available.
PCTs are also being asked to plan future services based on knowledge of the number of disabled children in their area, and to ensure all staff have disability equality training and training to work with disabled children.
"The PCTs we've consulted have been very supportive and describe our charter as eminently reasonable and deliverable," said Broach.
He added: "PCTs should already be meeting the commitments in the charter as they are drawn from existing law and guidance."
Cornwall and Isles of Scilly Primary Care Trust is one of the first to back the charter. Leah Parker, the trust's senior commissioning manager for children's services, said: "It will provide quality markers on the standards required to effectively deliver health care services for children with disabilities and their families."
A spokesman for health inspectorate the Healthcare Commission said: "We welcome any work that supports children with complex disabilities and raises children on the health agenda."
- www.edcm.org.uk/pct_charter
- See feature, p24.
