The children's palliative care strategy Better Care: Better Lives was supposed to create a more coherent structure for care. Regional networks, which bring together health and local authority commissioners with voluntary and statutory agencies that deliver services to children, were a major part of the strategy.
But a year on, Act (the Association for Children's Palliative Care) and Children's Hospices UK have admitted that a number of primary care trusts (PCTs) have been slow to act due to "other priorities".
A spokesman for the two organisations said: "Some networks are functioning well, some are not able to continue through a lack of funding and a number of places are having problems getting them going at all."
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