When you're providing care and support for terminally ill children and their families, you only have one chance to get it right. "That time in the child's life is so important and the family will have the memory of that child's care and death for the rest of their lives," says Lizzie Chambers, chief executive of ACT (The Association for Children's Palliative Care).
Even so, the sector has struggled for funding and understanding and access to palliative care services is a postcode lottery. The last year or so has been particularly difficult for providers, explains Chambers. With so many services provided by the voluntary sector, the move from giving grants towards commissioning has been tough.
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