Openness and honesty are key themes in this book, which offers a series of personal testimonies on the experience of having a disabled child.
Of course, there are significant structural and financial differences between bringing up a disabled child here and in the US - for example we do not have to worry about personal insurance. Nonetheless, this is a powerful and relevant book for anyone living with, or supporting a family with, a disabled child in the UK.
The publication of the National Service Framework for Children, Young People and Maternity Services emphasises the importance of getting support right from the start. Effective programmes and policies depend on the active participation of service users and Bernadette Thomas and colleagues have a wealth of personal stories to share, from a wide range of families and children.
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