BDF Newlife, which helps families with children affected by birth defects, is proposing a six-point action plan, which it wants the heads of primary care trusts and local authorities in England, Scotland and Wales to sign up to. The plan includes having a formal application process and reviewing spending to inform budgets.
BDF Newlife's chief executive Sheila Brown said: "Our research shows there is little appreciation of the spending levels needed to give the right support to disabled children."
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