Barnardo's Participation Project was established in 2002. It sought to develop ways of involving disabled children and young people in health, social care and children's services planning with the ultimate goal of achieving shared decision making between children and adults, the "top rung" of Hart's (1992) ladder of participation (see graphic).
This summary pulls out from the paper those factors that have contributed to and challenged successful participation in planning.
Participation in the project
The project seeks creative ways to facilitate the involvement of young people with complex difficulties. Young people aged 5 to 25 with a range of impairments can self-refer or be referred to the project but they must want to participate. The often lengthy process of enabling engagement results in the development of appropriate tools for meaningful participation.
The project has found that while individual engagement is person-centred, group advocacy by children and young people with disabilities demands:
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