All research requires ethics and governance consideration of any harm it might cause participants, yet we know relatively little about the experiences of service users who participate. This paper explores the views of parents and carers involved in an English study into outcomes for children known to children's services.
Experience of distress is a feature of participating in research into sensitive topics, but this does not mean participation is necessarily harmful. Since routine follow-up to research is rare, any harm experienced by participants is likely to remain hidden. Equally, lack of evidence on the benefits of participation may encourage ethical committees to take a risk-averse approach. These potential benefits include:
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