Throughout history epilepsy has been misunderstood and stigmatised. Atthe National Centre for Young People with Epilepsy (NCYPE) most childrenarrive with a poor history of school attendance and have beenbullied.
I was horrified to discover at a recent inquiry into the chronicunder-funding of epilepsy services organised by the Joint EpilepsyCouncil, that 69,000 people are living with unnecessary seizures and athird of those are likely to be under 18. Every year there are about 400avoidable deaths - at least 100 of which will be children.
Dedicated "sapphire nurses", initially funded by Epilepsy Action, arehelping to support young people with epilepsy, from medication advice toemployment issues to keeping them independent and safe.
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