The Healthcare Commission's 2008 State of Healthcare report found that "children with complex health needs do not always get the attention and care from healthcare services that they need".
On 22 June, Every Disabled Child Matters (EDCM) will publish Disabled Children and Health, a report highlighting the barriers to disabled children in accessing health services and gaps in provision for those with complex needs.
Contributor Adam Stafford said: "I had an operation when I was 10. The doctor prescribed me adult painkillers. The nurses couldn't give them to me and I suffered lots of pain." We also spoke to Belinda, who said: "It took me three attempts and two years to get the right wheelchair for my son."
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