Set up by parents of fragile X children in 1990, the Fragile X Society provides information and support to professionals, students and families through its national information and enquiry service. This includes books, videos, newsletters and conferences.
Fragile X information packs are sent free to enquirers. The society may also be able to provide speakers for in-service training.
It also provides telephone support for fragile X families through a network of family link members.
It arranges for fragile X families to take part in research and publishes the results of these studies.
- www.fragilex.org.uk; Email info@fragilex.org.uk; Telephone 01371 875 100.
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