In May the Treasury said next month's Comprehensive Spending Review would introduce a new target for local authorities and primary care trusts on services for disabled children.
Christine Lenehan, director of the Council for Disabled Children, said: "The challenge is getting something that both the Department of Health and the Department for Children, Schools and Families like, as well as something measurable."
Currently the way local authorities and primary care trusts gather data on disabled children is not standardised. "The difficulties are around how you measure like with like," she said.
Steve Broach, campaign manager for Every Disabled Child Matters, said: "The disabled children indicator is an essential element of the package of measures introduced in Aiming High for Disabled Children. We have to make sure local agencies make disabled children a priority so we need an indicator that reflects what matters to children and their families. The indicator needs to link closely with the core offer for disabled families set out in Aiming High and has to establish standards of information and support for families."
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