Few parents with two severely disabled children would choose to sail them across the Atlantic in a yacht. But, like thousands of families unable to pay for crucial home adaptations after being means-tested for the disabled facilities grant, Michael and Henrietta Spink were forced to take extreme measures.
After losing a legal bid for funding for essential adaptations to their home (Children Now, 23-29 March), the Spinks plan to sail to the United States to participate in research that may help to improve their children's conditions.
The family are also taking their battle to the Lords, upping pressure on the Government to abolish means testing of the grant, following an early day motion tabled last December that has been signed by 150 MPs.
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