CYP Now - Quarter of children’s epilepsy support plans not reviewed over last year, charity warns

More than a quarter of children with epilepsy have not had their education support plans reviewed in the last 12 months, new research finds.

Ruben, aged 12, is now home schooled after his school failed to understand his specific type of absence seizure, his mum says. Picture: Young Epilepsy

Just 56 per cent of more than 100,000 young people with epilepsy in the UK are currently estimated to have an individual healthcare plan (IHP), according to research from charity Young Epilepsy.

Of those who do have plans, 26 per cent had not had their plans reviewed in the last 12 months and just 36 per cent of plans included how epilepsy might affect their learning.

Its new report, which looks at the experiences of school support for 1,000 young people with epilepsy, states: “Without this IHP school staff are left in the dark about how to respond or even recognise a child’s seizures and what support they need at school.”

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