The survey of 615 families also found that seven out of 10 families felt they are not understood or accepted by their community and six out of 10 feel that society fails to recognise their role as a carer.
Also highlighted by the families were problems getting access to services and support, such as short breaks, a key worker and childcare. Half of all families said these basic services were unavailable to them.
Contact a Family chief executive Srabani Sen said: "It is shocking that in the UK today attitudes towards disabled children, from professionals and members of the public, are among the barriers preventing families from leading ordinary lives.
"Families with disabled children have enough challenges to overcome to secure the support they need without also having to cope with prejudice and ignorance."
The charity is calling for a government campaign to raise awareness of the needs of families with disabled children. It also wants to see mandatory disability equality training for all professionals that deal with the public and schools to do more to promote disability awareness.
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