We aim to involve disabled young people in the decision-making process around their healthcare, which means visiting them to talk through any problems and working with health professionals to address these.
Working with disabled children presents special challenges. It can often be difficult to obtain their views as their means of communication are limited and people assume they have nothing to say. But with time and patience, as well as specialist training, it becomes clear they do have something to say and are usually the ones that need someone to listen to them the most.
Time constraints are another challenge. We can only work with a certain number of young people at any one time and if there is a pressing issue, they may need a lot of your time. Switching off after work can also be difficult, especially if the case you are working on is emotional and the young person needs a lot of support.
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