NCB Now: Disabled children have say on health
Friday, February 3, 2012
The Council for Disabled Children (CDC), part of NCB, is taking part in an exciting new project that will help place children with neurodisabilities at the centre of evaluating the NHS care they receive.
The Children’s Outcome Measurement Study (Chums) will assess how the NHS can capture the views of children with neurodisabilities and their families who use its services.
This study comes at an important time for the healthcare of children with neurodisabilities as the NHS changes how it delivers care and measures outcomes. To help make sure these changes work for children with neurodisabilities, the Chums study will:
- Ask children and parents whether current questionnaires measure what they think is important;
- Assess if existing outcomes questionnaires are accurate and reliable;
- Investigate if the outcomes that children and parents think are important match those of health professionals.
CDC will be working with groups of young people and their families throughout the country to find out what health outcomes really mean to them, and how this information can be captured in an effective and inclusive way.
Amanda Allard, principal officer for health at CDC, commented: "Capturing the views of disabled children is a critical step that has the potential to improve disabled children and young people’s health outcomes."
- For further information or if you work with young people who would like to be involved, contact afellowes@ncb.org.uk
