NCB has been instrumental in ensuring that newly launched guidance on services for children and young people with cancer in England and Wales takes account of the views of young users.

The guidance, which highlights the distinct needs of young people withcancer, was launched by The National Institute for Health and ClinicalExcellence (Nice) and the National Collaborating Centre for Cancer.

The centre commissioned NCB to hold consultations with children aged twoto 14, siblings and parents to help inform the guidance'sdevelopment.

Clown doctors from Theodora Children's Trust entertained children duringthe consultations. The children discussed issues such as the standard ofcommunication, information and education they are offered.

Parents and siblings had the opportunity to discuss their preferred formof support.

Many of the consultations' key findings, such as the need to provideinformation in an age and culture appropriate format, have been includedin the final guidance.

"The consultations provided a unique opportunity for each family memberto talk about his or her experiences and we are delighted that theguidance reflects their voices," said Janine Shaw, head of

participation at NCB.

Rachel Hollis, senior sister at St James's Hospital commended NCB'scontribution to the guidance.

- For copies of NCB's report email jshaw@ncb.org.uk. The guidance can bedownloaded at www.nice.org.uk/csgcyp.